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Not An Ordinary Ice Bucket Challenge

By now, most of you have seen many videos of people dumping ice water over their heads. I am no different. I have seen at least one hundred videos and even did one myself. Each video meant something for the person doing it. But what took place at a golf outing brought me to tears.
I have been part of a golf outing for 20 years. Actually, this would have been the 20th year. But due to my progression, I could not make it. I went the last three or four years and was just driven around the course watching, but I was still a part of the fun. Fathers are now bringing sons and I had hoped to be part of that experience, but that was not in the cards.
I challenged the golfers at the outing to do an ice bucket challenge since I couldn’t be there. Little did I know that my good friend who runs the outing, Scott, had already put the wheels in motion. He challenged the golfers to try and raise $100 each. What happened brought me to tears. If they each raised the minimum amount, the total would have been about $3,000. But the final amount raised was almost $13,000. That is not a typo. Friends, friends of friends, and their friends came together to make a difference in my family’s life. My wife and I were overwhelmed with their love and support. All we can do is say thank you, which doesn’t seem like enough.
So, now what? The ice has melted and millions of dollars have been raised. More studies will be funded and many more families will be helped. We all want a cure tomorrow but it won’t happen overnight. Progress is being made and will continue to, especially if those who are now aware of ALS and donated to the cause decide to stay engaged with it. For my family and I, we are forever changed and now have some extra funds to help with my medical costs all because of a group of golfers who were challenged and went beyond the norm. Once again, thank you.

3 responses to “Not An Ordinary Ice Bucket Challenge

  1. alicew627@gmail.com ⋅

    Jim … you and the family deserve all this and more for all you have done to raise awareness and funds to look for a cure for ALS … God Bless you all and hope that maybe this will make things a little easier for all of you!

  2. Carole Ann Coombes ⋅

    Oh, Jim, THANK YOU!!! None of really knows or understands how God really works in this world, but one thing is for sure, God works through people like YOU!!!   You and your family continues to touch us in so many ways.  And we are forever grateful. You know, before my dear Jack died of ALS, one of the last things he said was, —“I will never leave you!”  And he hasn’t.  You never knew Jack, but you would have loved him–everybody did.  He did not live very long with the disease.  He was diagnosed at Mayo’s in June of 2000 and he passed away on New Years’ Eve just 6 months later.  Dec. 31, 2000.  And there is not a day that goes by , that something unusual and good happens–and I know that Jack is working through it.  My prayer to God — and to Jack is the same–  “Please let us find a cause and a cure for  Lou Gehrig’s Disease in our lifetime.” I pray for you and your family, Jim.   God bless you all. Carole Coombes

      From: Jim’s Journey with ALS To: caroleanncoombes@yahoo.com Sent: Wednesday, October 22, 2014 11:13 AM Subject: [New post] Not An Ordinary Ice Bucket Challenge #yiv6973604773 a:hover {color:red;}#yiv6973604773 a {text-decoration:none;color:#0088cc;}#yiv6973604773 a.yiv6973604773primaryactionlink:link, #yiv6973604773 a.yiv6973604773primaryactionlink:visited {background-color:#2585B2;color:#fff;}#yiv6973604773 a.yiv6973604773primaryactionlink:hover, #yiv6973604773 a.yiv6973604773primaryactionlink:active {background-color:#11729E;color:#fff;}#yiv6973604773 WordPress.com | Jim’s Journey with ALS posted: “By now, most of you have seen many videos of people dumping ice water over their heads. I am no different. I have seen at least one hundred videos and even did one myself. Each video meant something for the person doing it. But what took place at a golf o” | |

  3. christy robinson ⋅

    dear jim,
    think of you often as we are in the same boat here with my husbands diagnosis almost 3 years ago. he is doing well considering. only speech, arms and hands effected so far. you are an inspiration to say the least with your unwavering positive attitude. we live in Illinois. there doesn’t seem to be as many resources and support here. hard to know what to do to prepare for the future. so we try to take a day at a time. thank you for your blog. helps to know we arent in this alone.Hang in there. we will continue to keep you and others in our prayers.

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